I know many of you read the blog yesterday and the heaviness on your heart was lifted a little and you could walk just a little bit lighter.  Connor had a big day yesterday... we celebrated.  He was moved out of the ICU to the Neuro rehab floor. He seemed to enjoy the ride here to his new room.  When the bed was rolling... he was laughing ... and when it would stop... he would cry! And when arriving to the room The Wiggles and Giggles were on and he smiled a couple of times.  Oh...that sweet laugh and smile...something we will never take for granted again.  He still sleeps most of the time...but now we know he can wake up.  Grandpa Doug walked in last night and he opened his eyes 2 more times to see him.

                                            Connor tucked into bed for the night surrounded
                                             by all the wonderful things people have sent.
                                                                   THANK YOU!

Many of you have asked how to send things to Connor or the family:

The address is:

One Children's Place

Connor Scism

Room 19b  Floor 12

St. Louis, MO 63110

Life at the hospital:  Well, it is much like shift work.  One person can sleep in his room with him and two others are allowed to be in there in the chairs provided.  So we take turns every night. One of us gets to cuddle and sleep by him and the other two watch him as if any minute he will wake up and jump out of bed and be the crazy Connor we all know and love. During the day we rotate who gets to be with him...as there is a limit to the number of people that can be in the room.  If we all could be in the room...believe me...we would!


Last Night:  He had an OK night.  It was Aunt Jen and Grandpa Doug's shift.  He cried about every 30 min.  He had pain meds at 1 a.m.  and didn't have to have them again for 6 hours...so that was good. 

This morning:  He woke up this morning...for only about 3 minutes...but he woke up again.  He was crying because of the pain...which made us sad... but at least he had his eyes open.  The doctors explain to us that it will be a long road and we will have to take baby steps... but any steps are good steps.

What today brings... God only knows.... we hope we Celebrate.

Today is a GOOD GOOD DAY!!!!

Friday: Last night was a good night... We got to pick him up and love on him. We are sure he feels our love for him.  There have been so many wonderful visitors and people calling to ask about him and many people praying for him...we just know this will have a happy ending.  

                                                     Mommy by Connor's side this morning


He has a tube down his throat so the blood that is in his stomach can be drained. The doctors came in this morning...the next step... to put a feeding tube in and move him out of ICU....which neither have happened yet.  He still moves, coughs and cries. They still give him morphine for the pain. Mommy asked him this morning " Hey Connor, do you want to go outside?" It is almost as if he heard her...and opened his right eye for 20 seconds or so.  We celebrated.


A friend of the family had a care package delivered today with snacks and whatnots in it.  It had a Buzz Lightyear toy in it.  Incase you all weren't  aware....Connor's favorite movie is Toy Story.  He loves all the characters.  Daddy was trying to get the toy out which makes the typical Buzz Lightyear sounds and grandma says " Well, let's wait until we get to the next room, instead lets just put the Toy Story movie on for him".... so, of course, we did.... and .... WE CELEBRATED!!!!!

You see... Toy Story will always have a magical place in our hearts... because Connor heard Toy Story... and...
                                            CONNOR WOKE UP!!!!!!!!!!!!!!!!!!

He knew us.... he looked at Daddy, he looked at mommy, he looked at grandma.... he knew us ... he kept his eyes open. We got to see him...really see him for the first time in 4 days!

                                                WE CELEBRATED!!!!!!!!!!!!

The bellow of celebration could be heard all throughout the hallways... well that and grandma Kathy was running down the hallways telling everyone that he had woken up!

 So ... yes... this is a... GOOD GOOD DAY! This will be the one that goes into our memory log forever.

                                                  Connor with his eyes open... awake!!!!

Thursday:  Last night was ok.  Connor's breathing was very heavy from his bruised lungs so they suctioned him.  We have decided he must not like it too much because his eye flickered a few times.  We celebrated.  The neurologist came in and as he pinched Connor's leg... his eye opened 3 times for a second each time! We celebrated. It was like we got to see a little piece of him.  But then they closed again. Aunt Jen decorated Connor's door...we are sure there is more to come!  Physical therapy told us we could exercise his arms and legs.  He has opened his eyes a few more times this evening... but only for a second...but we will take it...we celebrate.

Connor's room from the outside.

Aunt Jen and Daddy did a great job

Grandma is getting some loves and cuddles in before bedtime.

How?

If you don't know ... or haven't heard.  Our little Connor is in the ICU at Barnes Children's Hosptial in St. Louis.

Since we are a couple of days late in putting up this blog... let's play catch-up.

Monday night:  Connor was in a car accident and immediately flown to Barnes Children's hospital.  He remained unconscious and was evaluated by a team of doctors.  They put a tube down his throat to help him breath and a catheter in.  The conclusion was that he had a broken nose and collar bone.  On Tuesday they would do a CAT scan/ MRI.

Tuesday: Connor has not woken up yet.  He has a fever. He coughes and cries and has good reflexes.  Meds were given for his pain that calms him a little.  An MRI was done on his brain...we should know the results on Wednesday. The tube did come out of his throat today and he is breathing on his own.  We sing to him and talk to him but as we go to sleep... he still has not opened his eyes.

Wednesday:  Last night was a good night ... all things considering.  He still has not woke up but he is breathing on his own although very heavy.  He isn't responding to anything verbally...but we know he is enjoying the singing. He does respond to pain. He has tremendous pain that the morphine helps relieve.  The results of the MRI came back.  There are about 10 spots damaged on his brain and 2 spots on the cable between the two lobes.  On a good side...his catheter is out and he had 3 wet diapers...  We celebrated!  As we go to bed he still kicks his legs, cries and coughs...but still we haven't seen his eyes.  Hopefully tomorrow...

bathed, tucked in and ready for a good nights sleep

Our little Connor

Hello Friends and Family!

We have created this page to keep you updated on our little Connor. So many of you have called, facebooked, and emailed to send your prayers and thoughts for Connor and we really appreciate the love you have shown for him and our family.