Sunday, October 16, 2011

A Roller Coaster Ride

The only thing we can correlate this journey with is a roller coaster ride.  Do you know that feeling of when you get on the roller coaster and you get so excited, but at the same time you are so scared?  It is like every moment for us.  As the roller coaster goes up the hill there is excitement and anticipation but as it goes down there is panic and fear... and then you realize... I made it through that. But then you see before you another big hill or possibly the big loop that is going to turn you upside down.  But I guess the good thing is that... the roller coaster eventually stops...and when you get off... even though it was a ride of ups and downs... you made it through it... you are ok... and you celebrate.  This is how we believe Connor's journey and our journey with Connor through this is and will be.


Yesterday... there was progress. We love progress.
The Neurosurgeon/neurologist came in and told us that just because Connor's eyes were open didn't really mean he was really awake, and just because he smiled once didn't really mean he was smiling for a reason. We didn't really understand this statement or really come to terms with it, because we are the ones in the room with him.  We know he sees us, we know he knows us, and we know that smile isn't just a fluke.  So what did Connor do.... he proved those doctors wrong!  It was almost like he was listening to the doctors and said " I am going to show them!"

You see... Nana Deonna was playing her paci (pacifier) game with Connor and he looked at her... smiled...and took that paci right out of her hand!  So there doctors... Connor will prove you wrong, you watch.  He is a strong little boy.  We jumped up and down! We hugged and we smiled. We CELEBRATED!


Connor with his paci                                                      




... and then we rested and we prayed and grandma Kathy got to sleep by his side this night.





Sunday:   Connor had a great night last night.  There hasn't been much going on today.  They are going to switch his i.v. from his left arm to his right arm.  We are hoping this will motivate him to move his left arm... we can only hope.  Neuro said there is a dime size spot on the place of his brain that tells the left side what to do.  We hope time will heal this and Connor will be his old self once again...baby steps.
Our goal for him today is for him to be able to swallow and that we know he is swallowing.  Then maybe he will be able to get the tube out of his throat.  He is breathing better and they have moved respiratory therapy from every for hours to every six hours.... progress!


This is where we are...





 We know we are in the best place we could be and Connor is getting the best care that he could possibly receive.  The doctors and nurses and all the staff have been so wonderful!



All of our friends, family, and people who don't even know us have been so wonderful sending their prayers and thoughts. Connor has so many little "happy's" spread throughout his room that he can look at and enjoy. You all are so amazing... our strength is fueled from all the phone calls, the texts, the gifts, the cards, the food, and the visitors.




4 comments:

  1. Only a Grandmother sees and knows when their grandchild is going to be ok. With God's power, intellegent doctors and Grandmother's love, Connor is going to be ok. You'll bond with that baby like no one else can. Continue to celebrate. Prayers continue. Carol Smith

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  2. Thank you for the blog and the updates! You are doing a wonderful job and it keeps us all informed of what prayers Connor and his family need. He is in our constant thoughts and prayers, and as you celebrate those "baby steps" so do we!!! Love, the Longs

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  3. Our hearts hurt for/with you as you continue on this journey. We cry when we read the blog...from excitement at the progress made. We are celebrating each and every step with you. Benny & Patsy

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  4. Thank you for posting so diligently. We are following Connor's progress and successes and sending the healing energy right back to him and your family. We love you Michael and Connor- and of course the rest of the family.
    Ali and Andy in Moab, UT

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